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Question:

What is myocardial noncompaction?

Hello, I am 24 and was recently diagnosed with myocardial noncompaction. I was told by my cardiologist that it was a rare disease and that it is only in the mild stage. My LVEF (left ventricular ejection fraction) went from 65% to 48% in two years. I have inappropriate sinus tach, trivial mitral valve insufficiently and a PFO (patent foramen ovale) that is 3.2cm in size. I am trying to get a better understanding of my disease and to find out is there anything that can be done for me at this stage. My cardiologist told me that it is a disease that gets worse on its own and that as it progresses, the only treatment options are a heart device or a transplant. I'm just in search for a better, more clear understanding.  

submitted by Jasmine from Houston, Texas on 1/11/2014

Answer:

Reynolds M. Delgado III, MDby Texas Heart Institute cardiologist, Reynolds M. Delgado, MD    

This is a rare condition which justifies evaluation by a specialist in heart failure and heart transplantation, as it can run the gamut from being benign to serious. Careful evaluation of it at a specialized center is justified.    

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Updated January 2014
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Texas Heart Institute Heart Information Center
Through this community outreach program, staff members of the Texas Heart Institute (THI) provide educational information related to the prevention, diagnosis, and treatment of cardiovascular disease. It is not the intention of THI to provide specific medical advice, but rather to provide users with information to better understand their health and their diagnosed disorders. Specific medical advice will not be provided and THI urges you to visit a qualified physician for diagnosis and for answers to your questions.
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